You're answering an email at your desk when the phone rings. It's the home health aide, your mom's pharmacy, your dad's doctor's office. You step out of a meeting to take it, then have to step back in like nothing happened. Three hours later, you're driving across town to pick up a prescription, then back to finish the workday, then back again to make dinner. The cycle can feel relentless. You're exhausted, behind on actual work, and quietly worried about whether your job, or your parent's care are sustainable.
This isn't a personal failing. It's a structural reality affecting tens of millions of Americans right now. The good news is that workplace protections, financial benefits, and practical caregiving strategies can make this period more manageable. This guide walks through what's available, what to ask for, and how to keep both your career and your parent's care from collapsing under the weight of trying to do everything alone.
In This Article
The Scale of This Challenge
If you're trying to hold down a job while caring for an aging parent, you are part of one of the largest and most underrecognized groups supporting the healthcare system. According to the AARP and National Alliance for Caregiving's Caregiving in the U.S. 2025 report, 63 million Americans are now family caregivers, a 45% increase over the past decade. Of working-age caregivers, 70% are also holding down jobs.
Source: AARP and National Alliance for Caregiving, Caregiving in the U.S. 2025
The strain shows up in measurable ways. Half of working caregivers report negative impacts on their work, like coming in late, leaving early, or reducing hours. According to a 2023 AARP and S&P Global survey of 1,200 working caregivers at large U.S. companies, more than two-thirds were struggling to find balance, more than a quarter had cut back hours, 16% had turned down promotions, and another 16% had quit work entirely at some point.
If caregiving and work feel unsustainable, you're far from alone. Many working caregivers eventually need additional support, workplace flexibility, or professional care assistance.
Your FMLA Rights as a Working Caregiver
The Family and Medical Leave Act (FMLA) is a federal law that gives many working caregivers job-protected, unpaid leave to care for a parent with a serious health condition. It's the most important workplace protection most caregivers never use, often because they don't know they qualify.
What FMLA Provides
According to the U.S. Department of Labor, eligible employees can take up to 12 weeks of unpaid, job-protected leave in a 12-month period to care for a parent with a serious health condition. During that leave:
- Your job is protected. Your employer must restore you to the same or an equivalent position.
- Your group health insurance continues under the same terms as if you were still working.
- Your employer cannot retaliate against you for using FMLA.
- Leave can be taken all at once, intermittently (in separate blocks), or as a reduced schedule when medically necessary. This is especially valuable for caregivers, since care needs are often unpredictable.
Who Qualifies
FMLA eligibility comes down to three things:
- Your employer must be covered. This includes private employers with 50 or more employees within 75 miles, all public agencies (federal, state, local government), and all public and private schools regardless of size.
- You must have worked there long enough. At least 12 months of employment (not necessarily consecutive) and at least 1,250 hours during the 12 months before your leave starts.
- Your parent must have a "serious health condition." The law defines this broadly. It includes any overnight hospital stay, conditions causing more than three consecutive days of incapacity that require treatment, chronic conditions like diabetes or Alzheimer's, and conditions requiring multiple treatments like chemotherapy or dialysis.
One important detail: "parent" under FMLA includes anyone who stood in the role of a parent to you when you were a child, even if they aren't a biological or legal parent. This can include grandparents, stepparents, foster parents, or others who acted in a parental role during your childhood.
If your employer doesn't qualify under federal FMLA (most commonly because they have fewer than 50 employees), check your state law. Many states, including New Jersey, have additional family leave protections.
NJ Family Leave Insurance: Paid Time Off Most People Don't Know They Have
This is one of the most underused benefits available to working New Jersey residents. The New Jersey Family Leave Insurance (FLI) program provides up to 12 weeks of paid family leave to care for a seriously ill family member, including aging parents.
Unlike FMLA, FLI provides actual wage replacement. According to the NJ Department of Labor:
- Up to 12 weeks of paid leave in a 12-month period (or 56 intermittent days)
- 85% of your average weekly wage, up to a maximum of $1,081 per week in 2025 ($1,119 in 2026)
- Funded entirely by worker payroll deductions (your employer doesn't pay)
- Available to most NJ workers, regardless of employer size
- Can be used to care for a child, spouse, parent, parent-in-law, sibling, grandparent, grandchild, domestic partner, or anyone with whom you have a close, family-like relationship
FLI vs. FMLA: How They Work Together
FLI and FMLA are separate programs that often work together. FMLA gives you the job-protected leave, FLI gives you partial pay during it.
For most working caregivers in New Jersey, the strategy is to apply for both. FMLA gives you the legal protection that your job will be there when you return. FLI gives you the money to actually pay your bills during the leave.
How to apply: File for FLI directly with the NJ Department of Labor at myleavebenefits.nj.gov. File for FMLA through your employer's HR department. You can apply for both simultaneously, and the leave can run concurrently.
Talking to Your Employer About Caregiving
Half of working caregivers don't tell their supervisor that they're caregiving. Some worry it will affect their career trajectory. Others feel like it's not their employer's business. But studies consistently show that disclosure, when handled well, leads to more flexibility and support, not less.
When to Disclose
The right time isn't during a crisis. Tell your manager early, when you can frame the conversation as planning ahead rather than reacting to an emergency. Bringing it up calmly, before you need anything urgent, signals that you're a thoughtful professional managing a complex situation, not a person whose work is about to fall apart.
What to Say
Keep it professional and forward-looking. You're communicating proactively and discussing possible solutions.
"I wanted to let you know that I'm taking on additional caregiving responsibilities for my mother. Right now it's manageable, but I want to make sure I'm being upfront so we can plan together if anything shifts. I'm committed to my work here, and I'd like to understand what flexibility might be available, and what FMLA or other benefits I might be eligible for. Could we set up a time to talk through it?"
Notice what this script does: it leads with transparency, frames you as solution-oriented, and invites your manager to be a partner rather than an opponent. It also opens the door to learning what benefits you may not know about, which often surfaces options HR didn't proactively share.
What to Ask For
- Information on FMLA, paid family leave, and any caregiver-specific benefits
- Flexibility on start/end times when possible (a one-hour shift can make all the difference for medical appointments)
- Remote work options on certain days, even if not normally allowed
- Permission to step away briefly when urgent calls come in
- A check-in cadence so your manager knows what's happening without you having to over-explain each time
Six Strategies for Sustainable Balance
Beyond formal benefits, there are practical strategies that working caregivers consistently report as the difference between sustainability and breakdown.
Consider professional home care support before burnout sets in
Most working caregivers wait until they're already burned out to consider home care. The math actually favors getting help sooner. A few hours of paid support per week can preserve your career, your health, and the relationship with your parent. Waiting until crisis usually costs more, financially and personally.
Centralize medical and care information
One binder, one shared cloud folder, or one app where every doctor, medication, insurance card, and care plan lives. When you're rushing into a doctor's appointment between meetings, having all the information in one place removes a layer of stress that compounds over time.
Block time for caregiving in your work calendar
Treat doctor visits, medication runs, and care coordination calls as actual calendar items, not interruptions. This protects you from over-scheduling work into time you'll need for caregiving, and it normalizes caregiving as part of your professional life rather than something to hide.
Distribute the load (with siblings and family)
If you have siblings, divide responsibilities specifically and in writing. "Mom's medical care" or "managing the finances" or "the weekend shift" are clear ownerships. Vague expectations lead to one sibling carrying everything and quietly resenting it. Direct conversations early prevent the explosion later.
Don't try to manage everything alone
You don't have to track every medication change, every prognosis, every option. Bring in professionals: home care nurses, geriatric care managers, social workers. Their expertise is what frees you to focus on what only you can do, which is being your parent's child, not their case manager.
Schedule respite for yourself, on the calendar
Respite isn't a reward for being a good caregiver, it's part of what makes good caregiving sustainable. A weekend away every couple of months, an evening off each week, time when you're not on call. This requires planning and backup care, but it protects against the slow-motion breakdown that takes out so many caregivers.
Workplace Benefits Worth Asking About
Many employers, especially larger ones, have expanded caregiver benefits in recent years that employees don't always know about. Worth asking your HR team about:
- Employee Assistance Programs (EAPs). Many cover counseling sessions, legal advice, financial planning, and care coordination services for caregivers, all confidentially and at no cost to you.
- Backup care benefits. Some employers contract with services like Care.com or Bright Horizons to provide subsidized backup adult care for emergencies.
- Caregiving concierge services. Some employers now offer caregiving concierge services: an expert who helps you navigate insurance, find providers, and manage logistics on your behalf.
- Paid family leave (employer-provided). Beyond NJ's FLI, some employers offer their own paid family leave, sometimes generously.
- Flexible work arrangements. Even if not standard, exceptions are sometimes made for caregivers who ask formally.
- HSA/FSA dollars for eligible care expenses. Some caregiving expenses qualify, depending on your plan structure.
- Caregiver Employee Resource Groups (ERGs). Internal support communities at larger companies. Less formal, but valuable for shared advice and reducing isolation.
Getting Paid as a Family Caregiver in NJ
If you're providing significant care yourself, especially if you've had to reduce work hours, you may qualify to be paid for that care. Several New Jersey programs allow family members to be compensated:
- Personal Preference Program (PPP). Part of NJ FamilyCare (Medicaid). If your parent is Medicaid-eligible and qualifies for personal care services, the program allows them to hire family members (excluding spouses) as their paid caregivers.
- Jersey Assistance for Community Caregiving (JACC). A non-Medicaid program for seniors at risk of nursing home placement. Offers up to ~$11,158 per year in care services, and some family members may qualify to be paid caregivers under program guidelines.
- VA Aid and Attendance. If your parent is a veteran or surviving spouse of a veteran, they may qualify for monthly benefits that can be used to pay family caregivers.
- Long-term care insurance. If your parent has a policy, check whether it allows payment to informal caregivers, some do.
- Direct payment from family. If your siblings can afford it, formalizing a personal care agreement and paying you for caregiving (with proper tax handling) is sometimes the most equitable arrangement.
These programs require eligibility verification and paperwork, but the payoff can be significant. For caregivers who have already reduced work hours, getting paid for the care you're already providing changes the math considerably.
Protecting Yourself from Burnout
Caregiver burnout is the slow erosion of your own health, emotional reserves, and capacity until caregiving becomes difficult to sustain. According to the AARP report, nearly half of caregivers report at least one negative financial impact from caregiving. Many also report poor health, depression, and relationship strain.
The signs to watch for in yourself:
- Persistent exhaustion that sleep doesn't fix
- Withdrawing from friends or activities you used to enjoy
- Resentment toward your parent or other family members
- Increased reliance on alcohol, food, or other coping mechanisms
- Difficulty concentrating at work, missed deadlines, declining performance
- Frequent illness, headaches, or stress-related physical symptoms
- Feeling like there's no end in sight, no version of normal returning
If several of these are true for you, that's the moment to bring in more help, not push through. Burnout doesn't resolve by working harder. It resolves by reducing the load.
Frequently Asked Questions
Can I take FMLA leave intermittently instead of all at once?
Yes. Intermittent leave is often the most useful form of FMLA for caregivers. You can take a few hours here, a day there, or reduce your weekly schedule for an extended period, as long as the medical need supports it. Many caregivers use intermittent FMLA for weekly therapy appointments, dialysis transports, or bad days during a chronic illness. Talk to your HR department about how to document intermittent leave correctly.
What if my employer is too small for FMLA to apply?
If your employer has fewer than 50 employees, federal FMLA doesn't apply, but in New Jersey you may still be covered by NJ Family Leave Insurance (which applies to employers of all sizes) and by the NJ Family Leave Act, which currently covers employers with 30 or more employees. Some states have even broader protections. Even at small employers, ask, many are willing to work out arrangements informally even when not legally required.
I'm worried disclosing my caregiving will affect my career. Should I just tough it out?
This is a real concern, but many workplace experts find that proactive communication often leads to better support and flexibility than waiting until performance issues arise. Hiding leads to performance issues that look unexplained to managers, instead of contextual. Most managers respond reasonably when given clear information and a forward plan.
What if my parent doesn't want professional help and my work is suffering?
This is one of the hardest situations working caregivers face. The honest answer is that providing all the care yourself indefinitely usually isn't sustainable, even when the parent prefers it. Read our companion article on talking to an aging parent about home care for approaches that often work better than direct requests. A trial period (even just a few hours per week of professional support) is often the bridge that gets families from "no help" to "manageable help."
How do I know when it's time to step back from work entirely?
Before quitting, exhaust all alternatives: FMLA, paid family leave, reduced hours, getting paid as a family caregiver, bringing in more home care. Quitting often costs more than it saves once you factor in lost wages, benefits, retirement contributions, and re-entry costs later. That said, for some families, full-time caregiving is the right answer for a defined period. If you're considering it, talk to a financial planner or geriatric care manager first to map out what the decision actually costs and whether there are alternatives worth exploring.
Caring while working shouldn't break you.
A few hours of professional home care a week can be the difference between burnout and sustainability. Towne Home Care offers free consultations to help working caregivers figure out the right level of support, no commitment required.
No obligation · No long-term contracts · Available 24/7
Sources
- AARP and National Alliance for Caregiving. "Caregiving in the U.S. 2025." July 2025. aarp.org
- U.S. Department of Labor, Wage and Hour Division. "Family and Medical Leave Act." dol.gov/agencies/whd/fmla
- U.S. Department of Labor. "Family Caregivers: Information on the FMLA." dol.gov/agencies/whd/fmla/family-caregiver
- NJ Department of Labor and Workforce Development. "Family Leave Insurance." nj.gov/labor/myleavebenefits
- NJ Department of Labor. "Expanded Family Leave Benefits." myleavebenefits.nj.gov
- AARP. "How Caregivers Can Use FMLA to Care for a Family Member." 2024. aarp.org/caregiving
- "Working While Caregiving in 2025." Innovation in Aging, Oxford University Press, 2025.
- Pew Research Center. "Family Caregiving in an Aging America." February 2026. pewresearch.org